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My Chronically Fit Hotmess Life

My Chronically Fit Hotmess Life

My journey as a working wife/mom with Cystic Fibrosis and all the fun in between

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Tag: vertex

Full Clinic Update

February 19, 2020 chronicallyfithotmess
Tagged blogger, Cystic fibrosis, health, Life, Nutrition, vertexLeave a comment

First PFT since Trikafta

February 18, 2020 chronicallyfithotmess

This happened yesterday!!! Just now getting it posted on my website.

LUNG FUNCTION 94% up from 73% …..a 21% increase!!!!!!

I haven’t seen the 90s in over 5yrs!!!!!!

God bless Trikafta!!!!

Full clinic update later!!!

Tagged Cystic fibrosis, health, Life, trikafta, vertexLeave a comment

Days 5 through 12 Trikafta Update

December 30, 2019 chronicallyfithotmess

Lots of good news to report! Check it out.

Tagged blog, blogger, Cystic fibrosis, Good news, health, journey, Life, My journey, My life, trikafta, Update, vertexLeave a comment

Day 2 Trikafta

December 19, 2019 chronicallyfithotmess

Not a lot to report but good news

Tagged Awareness, blog, blogger, cfawareness, Cystic fibrosis, cysticfibrosisfoundation, journey, Life, lifechanging, Medication, My life, myjourney, newdrug, trikafta, vertexLeave a comment

Day 1 on Trikafta

December 18, 2019 chronicallyfithotmess

Below is my recorded blog on how my day has gone since taking my first dose of the new Cystic Fibrosis drug, Trikafta

Tagged blog, blogger, cfawareness, cflife, Cystic fibrosis, cysticfibrosisfoundation, Medication, My life, myjourney, newdrug, TeamJess, trikafta, vertexLeave a comment

Day 1 First Dose

December 18, 2019 chronicallyfithotmess

First morning dose of Trikafta down. I will take notes all day of everything that happens and record a blog this evening.

And so this journey begins.

Tagged Awareness, blog, blogger, cfawareness, Chronicallyill, cysticfibrosis, cysticfibrosisfoundation, Jessinreallife, Life, lifechanging, Medication, myjourney, mylife, soexcited, soitbegins, TeamJess, trikafta, vertexLeave a comment

Trikafta has arrived!

December 17, 2019December 18, 2019 chronicallyfithotmess

IT’S HERE!!!!!!!!!!!

AAAAAAAAAAHHHHHHHHHHHHHHH!!!!!!

It’s a little late in the day to take the first dose so I will start tomorrow and blog my journey

❤❤❤❤❤❤

Tagged cfawareness, cflife, cysticfibrosis, cysticfibrosisfoundation, itbegins, myjourney, mylife, newdrug, soexcited, trikafta, vertexLeave a comment

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